Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes
Biomedical data are now organized in large-scale databases allowing researchers worldwide to access and utilize the data for new projects. As new technologies generate even larger amounts of data, data governance and data management are becoming pressing challenges. The FAIR principles (Findable, Accessible, Interoperable, and Reusable) were developed to facilitate data sharing. However, the Indigenous Data Sovereignty movement advocates for greater Indigenous control and oversight in order to share data on Indigenous Peoples’ terms...
Carroll Stephanie Russo, Garba Ibrahim, Plevel Rebecca, Small-Rodriguez Desi, Hiratsuka Vanessa Y., Hudson Maui, Garrison Nanibaa’ A. Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes. Frontiers in Genetics. Vol. 13. 2022. DOI=10.3389/fgene.2022.823309. https://www.frontiersin.org/article/10.3389/fgene.2022.823309