Stephanie Russo Carroll, Dr.P.H., M.P.H. (Ahtna-Native Village of Kluti-Kaah)

ASSOCIATE DIRECTOR and MANAGER, TRIBAL HEALTH PROGRAM

Other University of Arizona positions:

ASSISTANT RESEARCH PROFESSOR, UDALL CENTER FOR STUDIES IN PUBLIC POLICY

ASSISTANT PROFESSOR, PUBLIC HEALTH and AMERICAN INDIAN STUDIES GRADUATE PROGRAM

CO-DIRECTOR, CENTER FOR INDIGENOUS ENVIRONMENTAL HEALTH RESEARCH

Phone: (520) 626-0664
Email: stephaniecarroll(at)arizona.edu

Curriculum Vitae



Stephanie Russo Carroll (Ahtna-Native Village of Kluti Kaah) is Assistant Research Professor, Udall Center for Studies in Public Policy (UC); Associate Director and Manager – Tribal Health Program, the Native Nations Institute (NNI) in the UC; Assistant Professor in the Public Health Policy and Management Program at the Community, Environment and Policy Department, Mel and Enid Zuckerman College of Public Health (MEZCOPH); Assistant Professor, American Indian Studies Graduate Interdisciplinary Program; and Affiliate Faculty, College of Law at the University of Arizona (UA).

Stephanie's research explores the links between Indigenous governance, data, the environment, and community wellness. Her interdisciplinary research group, the Collaboratory for Indigenous Data Governance, develops research, policy, and practice innovations for Indigenous data sovereignty. Indigenous data sovereignty draws on the UN Declaration on the Rights of Indigenous Peoples that reaffirms the rights of Indigenous nations to control data about their peoples, lands, and resources. The Collaboratory’s research, teaching, and engagement seek to transform institutional governance and ethics for Indigenous control of Indigenous data, particularly within open science, open data, and big data contexts. The Collaboratory primarily collaborates with Indigenous Peoples and nations in the US Southwest and the Arctic, as well an international network of Indigenous data sovereignty and governance experts. Collaboratory members also often partner with communities to which they belong, including Indigenous communities. Stephanie offers Indigenous women-led mentoring of undergraduate through junior faculty and research staff with the goal of producing policy-relevant research through skill and knowledge acquisition. The Collaboratory’s disciplinary breadth includes public health, law, business, geography, sociology, social work, public policy, and environmental and climate sciences.

Stephanie co-founded the US Indigenous Data Sovereignty Network and the International Indigenous Data Sovereignty Group at the Research Data Alliance, and is a founding member and current chair of the Global Indigenous Data Alliance (GIDA). Stephanie was also a founding member of the UAs American Indian and Indigenous Health Alliance Club at MEZCOPH and is a founding member and current president for the UA Native Faculty, working to support the recruitment and retention of Indigenous students and faculty at the UA. Stephanie is a founding board member for the Copper River Tribal College in Chitina, Alaska. Stephanie received her AB from Cornell University and MPH and DrPH from MEZCOPH.


Courses

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This course explores codes, guidelines, policies, and processes at tribes, other governments, and institutions that govern and steward research with Indigenous Peoples, nations, and communities; the infrastructure, capacity, and capability required at these governments and institutions to support tribal sovereignty; and implications for other entities such as funders and publishers.
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This course examines research ethics and review processes through an Indigenous lens. Utilizing research and ethics frameworks from a diverse array of disciplines and geographies, this course explores the history of research and ethics by, with, and for Indigenous Peoples, communities, and nations.


Projects

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A NSF funded project aimed at strengthening the ability of Native nations to exercise sovereign rights over their data.
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A professional organization focused on research, policy, and practice for Indigenous data sovereignty in order to transforming institutional governance and ethics for Indigenous control of Indigenous data.
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A NSF funded project supporting the comparative study of COVID-19 impacts on Indigenous food access, security, and sovereignty in Alaska and the Southwest U.S.
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A NSF funded project to develop an Indigenous data governance framework by drawing on international norms (i.e., the United Nations Declaration on the Rights of Indigenous Peoples) and relevant data governance standards (i.e., the CARE Principles for Indigenous Data Governance).
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The goal of IFKN is to develop a network comprised of Indigenous leaders, community practitioners, and scholars (both Indigenous and non-Indigenous) who are focused on research and community capacity related to food sovereignty and Indigenous Knowledge.
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A NSF funded project to advance knowledge in the sciences by identifying factors that support or inhibit effective ethical research engagement with Indigenous communities and diverse knowledge systems in scientific research.


Recent Publications

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Carroll Stephanie Russo, Garba Ibrahim, Plevel Rebecca, Small-Rodriguez Desi, Hiratsuka Vanessa Y., Hudson Maui, Garrison Nanibaa’ A. Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes. Frontiers in Genetics. Vol. 13. 2022.
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Austin CC, Bernier A, Bezuidenhout L et al. Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group [version 1; peer review: 1 approved, 2 approved with reservations]. Wellcome Open Res 2020, 5:267
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Walter, M., Kukutai, T., Carroll, S.R., & Rodriguez-Lonebear, D. (Eds.). (2020). Indigenous Data Sovereignty and Policy (1st ed.). Routledge. https://doi.org/10.4324/9780429273957
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Russo, Stephanie Carroll. "Emerging Ethics in Indigenous Genomics" in Complicated legacies: The human genome at 20. Science. February 5, 2021: Vol. 371, Issue 6529, pp. 564-569 DOI: 10.1126/science.abg5266
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Hiraldo, Danielle, Kyra James, and Stephanie Russo Carroll. 2021. Case Report: Indigenous Sovereignty in a Pandemic: Tribal Codes in the United States as Preparedness. Frontiers in Sociology. 6:617995. doi: 10.3389/fsoc.2021.617995
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Russo, Stephanie Carroll; Maui Hudson; Jarita Holbrook; Simeon Materechera,; Jane Anderson. Working with the CARE principles: operationalising Indigenous data governance November 9, 2020. Ada Lovelace Institute. Blog. Retreived from https://www.adalovelaceinstitute.org/blog/care-principles-operationalisi...
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Carroll, S.R., Garba, I., Figueroa-Rodríguez, O.L., Holbrook, J., Lovett, R., Materechera, S., Parsons, M., Raseroka, K., Rodriguez-Lonebear, D., Rowe, R., Sara, R., Walker, J.D., Anderson, J. and Hudson, M., 2020. The CARE Principles for Indigenous Data Governance. Data Science Journal, 19(1), p.43.
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Rodriguez-Lonebear, Desi PhD; Barceló, Nicolás E. MD; Akee, Randall PhD; Carroll, Stephanie Russo DrPH, MPH. American Indian Reservations and COVID-19, Journal of Public Health Management and Practice: July/August 2020 - Volume 26 - Issue 4 - p 371-377
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Hudson, M., Garrison, N.A., Sterling, R. et al. Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data. Nature Reviews Genetics 21, 377–384 (2020).
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Dominique David-Chavez, Daniel B. Ferguson, Andrew Curley, Travis Lane, Sheldwin Yazzie, Sarah LeRoy, and Stephanie Russo Carroll. 2019. Policy Brief: Supporting Tribal Data Governance for Indigenous Community Climate Resilience. Tucson: Native Nations Institute and the Climate Assessment for the Southwest, University of Arizona.​


Explore more of Stephanie's publications and resources on the Indigenous Governance Database.