Genomic Research Through an Indigenous Lens: Understanding the Expectations

Citation

Garrison, N. A., Hudson, M., Ballantyne, L. L., Garba, I., Martinez, A., Taualii, M., . . . Rainie, S. C. (2019). Genomic Research Through an Indigenous Lens: Understanding the Expectations. Annual Review of Genomics and Human Genetics, 20(1). doi:10.1146/annurev-genom-083118-015434

Indigenous scholars are leading initiatives to improve access to genetic andgenomic research and health care based on their unique cultural contexts and within sovereign-based governance models created and accepted by their peoples. In the past,Indigenous peoples’ engagement with genomic research was hampered by a lack of standardizedguidelines and institutional partnerships, resulting in group harms. This article provides a comparative analysis of research guidelines from Canada, New Zealand, Australia, and the UnitedStates that pertain to Indigenous peoples. The goals of the analysis are to identify areas that needattention, support Indigenous-led governance, and promote the development of a model researchpolicy framework for genomic research and health care that has international relevance for Indigenous peoples.

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